Our plan

A private space for your family — her details, your checklist, and your trial shortlist. Enter the family code to continue.

Private · your family only

Everything here is saved to your own private store. Edit freely and hit save.

This plan is for

Onset type

Diagnosed where

Diagnosed when

Genetic testing status

Current ALS centre

Baseline ALSFRS-R

Breathing (FVC/SVC)

Weight note

Where you can be based

Current medications

Mirrors the Steps to enroll. Tick what's done and jot notes.

Paste promising trials from the finder (title + link) and note why.

Kept private behind your family code. This is your own record-keeping space — it isn't monitored and isn't medical advice.